Ten-year-old Lana is fighting a difficult battle with a rare disease; hope lies in gene therapy in the USA

Ten-year-old Lana is fighting a difficult battle with a rare disease; hope lies in gene therapy in the USA
Ten-year-old Lana, born a healthy girl, is now facing a difficult and progressive rare disease that threatens to confine her to a wheelchair. The diagnosis of Unverricht-Lundborg syndrome has changed ...

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